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Posted about 6 years ago
ITP Foundation Announces ITP Family Weekend
Darien, CT – The ITP Foundation, dedicated to battling the bleeding disorder ITP (immune thrombocytopenic purpura) in children, announced today that the Hole in the Wall Gang Camp will hold a special ITP Family Weekend at its facilities in Ashford, CT on April 18-20. The camp is specifically for families with a child or children affected by chronic ITP.
“There will be many fun activities, educational programs, camp activities, and most of all, a chance to meet and share information with other families who know about the special challenges associated with ITP,” said Christopher Landino, Executive Director of the ITP Foundation. During the weekend, the ITP Foundation will also schedule a parents-only informational meeting with a doctor with significant experience with ITP.
All of this takes place in the beautiful surroundings of the world famous Hole in the Wall Gang Camp located in upstate Connecticut and started with donations from Newman’s Own, the food company created by Paul Newman. Newman is still an active member of the Camp’s Board of Directors.
“We are very excited that the Hole in the Wall Gang Camp is again opening its doors to children with ITP and their families, as they did in our inaugural collaboration in 2007,” said Landino. “We feel fortunate that this renowned organization recognizes the needs of families dealing with the challenges associated with ITP and is willing to help in this special way.”
“The Hole in the Wall Gang Camp is pleased to be working with the ITP Foundation on this special weekend camp,” said Dr. Sharon Space, Medical Director of the Hole in the Wall Gang Camp. “The Camp is dedicated to helping children and families deal with the challenges associated with many different diseases and illnesses, and we are glad that we can offer our services to those affected by chronic ITP.”
There is no cost to families to attend, other than providing their own transportation to and from the Camp. The ITP Foundation has established a small travel fund for families who, without assistance, might not otherwise be able to attend. Grants will be awarded on a case-by-case basis.
Any family with a child age 5-15 who has chronic ITP is eligible to attend.
Completed application forms are due by February 29.
Applications are available at: www.holeinthewallgang.org or at www.itpfoundation.org. For more information, please contact the ITP Foundation: firstname.lastname@example.org.
About ITP and the ITP Foundation
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| Posted about 6 years ago
Wow! I am excited to see that this oppurtunity is out there for children and their families affected by ITP. I was diagnosed with chronic ITP at the age of 19, and it was and still is one of the scariest experiences of my life. I think it will be fantastic for the families to discuss the disease and find out more info and treatment options!