Does anyone on here know of a group, or type of nurse that advocates and assists in protecting the rights of, me and people like me frankly. I am very concerned once again and it is affecting my health mentally and physically. Mostly mentally right now. I am having a great deal of fear and angst over this. I need some direction. I have only had approximately 5 months of relative stability in my medical care since Jan 07. Five months of pain management, the only pain management in five years. I feel lost and alone. I am. Where do people like me get help when the normal channels have been blocked? Below is some clarification as to the current trigger for this need, and below that is a synopsis of what I have experienced until now.

I am upset that my current pain doctor whom I have had since November waited to tell me he was moving until just a week prior to moving over to work at the group that dismissed me and lead me to him. Even if he had forgotten what I told him they would have looked at his patient list to let him know who was in and who was out in advance. He could have given me enough time to find another doctor and be able to confer with him and his staff. I am not allowed to even go onto the grounds of one of those medical groups offices.  It certainly explains that odd look of fear and concern on his face the last time I saw him two weeks ago. It also makes me wonder now, why in my first office/surgerycenter visit he offered to inject me (C-spine) to test for Facet disease, I said no. A month or so ago when I decided to try it he was having me sent out for the injection. That injection never happened as the place he wanted to send me to was one of those that banned me for objecting to the false report the PA wrote. Can you imagine? I got banned for being angry that the report was false and saying so. Mostly for being angry and expressing it. The person who banned me told me so.

What the hell did they say to him to get him to do that? He was a stand up guy until then.

I came to Nursinglink at a time when I was particularly in distress. I am and have been facing deliberate ostracizing from the local medical community. I have been denied care, ignored when I reported severe pain, abused and manipulated psychologically, lied to and about. The poor treatment began when I cam here 5 years ago. It has gotten progressively worse.

When I complain I am ignored, then run off from the practice with the lie that I am threatening. My care at the next place is sabotaged; I am guessing this takes place when my records are called for. The first appointment is always great. When I come in the second or third time (I am disabled with chronic pain so I visit often) it is uncomfortable, strained, weird, and I feel like a freak. If I ask I am told nothing is different, if I ask twice I am spoken to very sternly and warned to stop my “behavior”… you see. I have no idea why and resent that I even think of that. I can only imagine it is what I look like, or as is more likely with these people it is the things they make up and say about me, being passed along in gossip, abusing the trust of their position and the medical information communication channel. Or worse they are passing judgment on me and my character based on how they feel about me when they see me. Our conversations are minimal due to my preferences and other issues. I have recently come to know that I am frightening to some people around here! holy crap was my reaction, then it made a little sense. Fear makes people act stupid. That is no excuse for professionals or anyone for that matter! Imagine holding someone responsible for what you feel about the way they look!

I finally found out that at this last medical group I was at, the P.A. that I saw, the one who drove me here to Nursinglink and to my current pain doctor, was a student under the doctor that disabled me! “Dr.,  you’ll be back to work in three months.” She said in that medical report that I was looking to generate a lawsuit! Wonder why doctors shy away from me now?! This is the PA that spent twenty minutes talking me out of an MRI for the wrist I wanted to chop off, then left the room when I agreed. When she came back in she offered the MRI to me knowing full well based on simple psychology, that I would refuse! When I got an MRI by paying someone cash for it, the damage was incredible. The tendons look like bones they are so injured. There was a possible break of the schaphoid, and many many other things wrong!

None of them ever bring up anything with me that might be construed as letting me know I have done something wrong or innapropriate except when I object to poor treatment then it is shock and awe with the intimidation and threats. They know I am down to nothing now. They have managed to run me out of all medicare doctors offices.

what the hell did I do to deserve this?

Thank you The Beat Goes On. I loved that show. I'm doing pretty good now. I have a new pain doctor who wants to do a bunch of diagnostics on me. I find that to be a good thing. I'm hoping he'll find something.

My profession has become coping with my situation. I was a construction worker when I went in for the surgery that started this pain spiral. I came here to ask a nurse for guidance hoping someone had seen the sort of problem I was having with medical staffers before. My desire is to eventually become a Radiologic Technologist. I don't think that will be possible now. I guess if I ever get well enough I'll go to school for whatever medical profession I can without having to meet the physical requirement of lifting a person. With the caveat that I can do the school work. :-} I can hardly think and I have little comprehension or retention anylonger.

I'm sorry I think I posted twice. I am doing pretty good today. I hope I can establish with this new guy permanently. He even did an injection into my head for the headaches. I feel mentally clearer and my vision seemed to clear but the headache is still there.

I appreciate the concern.